As any loving mum would, I always look for ways to help Finley since his diagnosis and, as per usual, I was recently mooching around the internet hoping to find the miracle 'cure' for his non-verbal, minimal understanding, often difficult to deal with Autism. It was not to be. Obviously! But hey, one can dream...
It was the Supreme Court ruling that wheelchairs take precedence over buggies on buses that really got me thinking. How on earth am I supposed to fold his buggy down if asked. I imagine a bus load of people burning holes in the back of my head, staring, judging or tutting, all whilst I look at the wheelchair-bound person who is expectantly awaiting my move. It absolutely terrifies me.
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Such a happy, smiley little boy. |
Disability seems to be pigeon-holed to the image of a wheelchair. So wrong. Despicable even. It's 2017!
I've witnessed people say that there's no reason it couldn't be done. That if that child was truly 'disabled' their pram would have obvious physical adaptations or, clearly, their oxygen tank would be attached. What the hell?
So disability is only valid when visible. Yeah, OK hun.
Don't forget though, "parents choose to have kids, wheelchair users don't choose to have no legs." Again, dramatic much? A) Using a wheelchair doesn't mean that the user "has no legs", talk about a massively disrespectful generalisation... and B) As a parent I didn't choose for my son to have a lifelong neurological condition.
Just because you can't see it, doesn't mean it doesn't exist.
With the above in mind and my searching the net for any additional pointers that might help Finley, I came across CALL Scotland's communication passport templates online. OooOoo!! What's this, I thought, with great intrigue.
A personalisable mini guide as to how my little person works - helpful for all who see him or need to spend some time with him. It certainly saves having to run through everything every single time, that's for sure.
In addition, in the case of the bus issue, when he bolts in public and fails to respond to his name or it looks like I'm torturing him by holding on to him for dear life as he screams, thrashes and hits out, this could be really REALLY good for when he's "a naughty boy" (or whatever they want to say) when not in his buggy on a bus.
In addition, in the case of the bus issue, when he bolts in public and fails to respond to his name or it looks like I'm torturing him by holding on to him for dear life as he screams, thrashes and hits out, this could be really REALLY good for when he's "a naughty boy" (or whatever they want to say) when not in his buggy on a bus.
Check it out...
I plan on having some of these made professionally to keep in his change bag, coat pocket, my handbag - wherever I can, really. It would look so much better than this sellotaped, whacked together version! Of course, I want to tweak it slightly, add a photo of him and put background colours in place etc. When I've taken that step and had them made, I'll share the finished product with you all.
You can find their templates over at communicationpassports.org.uk and there's a good, wide range to choose from.
What do you think? Will you use one for your little dude or dudette?
Image of Finley courtesy of Little Rainbows
What do you think? Will you use one for your little dude or dudette?
Image of Finley courtesy of Little Rainbows